One day at a time...

I serve a powerful God that continuously pours out his blessings, for that I rejoice. And I am so richly blessed. I also carry in this earthly body, a disease for which He has not revealed the cure. I am living with a progressive form of rheumatoid arthritis called ankylosing spondylitis, this blog is a record of the everyday struggles and triumphs of this life altering disease. I try to remain faithful and give thanks to a God that gives me each new day. This is about my journey and taking it one day at a time...
Showing posts with label AS. Show all posts
Showing posts with label AS. Show all posts

Friday, January 7, 2011

From the top...

Finally I am back at work.  I like living by myself, but I need the people I work with and my students more than I could have ever imagined.  A new semester has helped distract me from the pain.  I got to see my first basketball game of the season tonight and forgot how much joy I get watching middle schoolers play their hearts out.  The season started in November.  If not for middle school basketball, I never would have gotten to know the sweet man that I might actually marry some day (heading into year 3 of engagement, and completely content).  I am very sentimental when it comes to basketball. I am looking forward to the rest of the season and a few more wins.

I am thankful for everything I CAN do and that the pain is actually not as bad as it was in November.  I am thankful for physical therapy and the muscles that are stronger now.  I will continue to be hopeful and try to be as positive as I can, and when I can't, there are always the meds that knock me out.

Holidays.

Snow made this Christmas the best yet, make that second best.  The year I got engaged is the best Christmas.  I spent a lot of my time off coming to terms with my disease. I have to live with it, so I try to stay as positive as possible.  I still can't believe I didn't go to work for six weeks.  I gave myself that time to heal, hoping that it would be the same as all the flares of years past.  I was wrong.  Now I have to move on and know that I can do as much as I can do, but not nearly as much as I used to.  I do in fact have to live with it for the rest of my life and it has already changed me, physically and emotionally.

Saturday, November 13, 2010

House Arrest

Living with RA or as I recently found out, AS is no fun sometimes.  Ankylosing Spondylitis is a type of RA that causes calcification and fusing of the vertebrae and sacroiliac joints.  Looking at the Xrays I only have the beginning stages but for three weeks I have been in pain from inflamation in these joints that are unable to move the way they should.

I went for four straight years and never missed a day of work, and then last school year, I had health issues I couldn't ignore and this year, only in November, I have missed numerous days. To be specific, 7 of the last 15 school days and I will be out all next week trying to get an epidural to stop the low back pain. Then we have a week for Thanksgiving, so hopefully two straight weeks will get me back on my feet.

I am surrounded by supportive friends and coworkers that may not understand the joint issues, but they do understand that I am in pain.  They even sent an edible arrangement.   Yummy!



I am truly thankful for them as well as a doctor that thoroughly went through my test results and wants me to be pain free and live well.  I am going to visit an endocrinologist about my thyroid and hopefully start physical therapy in addition to the epidural.

I am hopeful!




Wednesday, September 22, 2010

Back to the foot doctor tomorrow

Tomorrow I go back to visit one of my newest and one of my best doctors.  He is a podiatrist and is very understanding of my pain and the importance of getting rid of it.  I am very happy I made the switch.  I am also changing Rheumatologists soon.  Current doctor is not understanding of the pain and managing it. The steroid shots are not a positive of tomorrow's visit, but the relief outweighs the temporary.  Bible study today was great, it always is.  Another blessing He has brought into my life.  I am so fortunate to work with such wonderful women.  We learn from one another constantly.  God is good all the time!