The past two weeks have been overwhelming...Surgery is fast approaching
In the Rheumatologist's office, the informational TV is constantly scrolling and one of the pieces of wisdom..."Taking your medicine everyday is not a reminder of how sick you are, it is a reminder of the good you are doing for yourself" Although I still don't know if I agree with that statement, I do know first hand that TWO weeks without them, feels like 2 months. The meds make you forget what the symptoms were that made you start on them in the first place.
My hands and feet are more swollen than I have ever seen in my life (really ugly too) but the pain they experience to the touch will be with me for a long time. In exchange for all of these returning RA/AS symptoms, the pain patch has worked to alleviate the pain in the SI joints, but then again, I might just be distracted by all of the new pains and mobility issues...oh yeah, I am still off the meds until 4 weeks after surgery.
The optimism seems to get lost in the management of the new and worsening symptoms, but nonetheless, I concentrate on the promise of each new day (and even more so now, the freedom from work)
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