One day at a time...

I serve a powerful God that continuously pours out his blessings, for that I rejoice. And I am so richly blessed. I also carry in this earthly body, a disease for which He has not revealed the cure. I am living with a progressive form of rheumatoid arthritis called ankylosing spondylitis, this blog is a record of the everyday struggles and triumphs of this life altering disease. I try to remain faithful and give thanks to a God that gives me each new day. This is about my journey and taking it one day at a time...

Tuesday, February 22, 2011

Taking care of me

The hours drag past and I should be asleep, but I see everything that has to be done before I leave in the morning...what a weird feeling: packing like I am traveling, but I will only be a few minutes from my apartment.  Don't have the option to run home and grab anything...I am stuck in the hospital bed for at least 5 days.  I will go in at 8 this morning for a bilateral Sacroiliac fusion with pelvic graft and titanium hardware fixing it all together.

The prayers and well wishes have been overwhelming and the offer of help, which one should always be thankful for, has made it harder for me to prepare me.  The irony is that I truly enjoy doing for other people and helping however I can, but now I have offers for help...it really is easier to do it myself...not to mention, once all of the help has gone, I still live here and have to be able to find things (quite possibly with limited mobility).

I will be forever grateful for the people that He has sent to provide for my needs and the ability to humble myself and receive the blessings He has in store.

Only five and a half hours until it is my turn...

Sunday, February 20, 2011

Tree trunks and water balloons...

The past two weeks have been overwhelming...Surgery is fast approaching

In the Rheumatologist's office, the informational TV is constantly scrolling and one of the pieces of wisdom..."Taking your medicine everyday is not a reminder of how sick you are, it is a reminder of the good you are doing for yourself" Although I still don't know if I agree with that statement, I do know first hand that TWO weeks without them, feels like 2 months.  The meds make you forget what the symptoms were that made you start on them in the first place. 
My hands and feet are more swollen than I have ever seen in my life (really ugly too) but the pain they experience to the touch will  be with me for a long time.  In exchange for all of these returning RA/AS symptoms, the pain patch has worked to alleviate the pain in the SI joints, but then again, I might just be distracted by all of the new pains and mobility issues...oh yeah, I am still off the meds until 4 weeks after surgery. 

The optimism seems to get lost in the management of the new and worsening symptoms, but nonetheless, I concentrate on the promise of each new day (and even more so now, the freedom from work)